Me/CFS & fibromyalgia (+ donation links)

Request Netflix to have Unrest on their streaming service

it’s possible that if enough people request ‘unrest by Jennifer Brea’ Netflix might reconsider their decision to remove it (link inside)

After the debate - CALL FOR CHANGE for ME patients

A UK petition to sign

ME/CFS donation links

Polybio (another one to donate to)

a research organization for for complex chronic inflammatory diseases

Open Medicine Foundation

Since our inception in 2012, Open Medicine Foundation (OMF) has raised over $35 million to fund open and collaborative research and improve health care for millions suffering with multi-system chronic, complex diseases (msCCD) such as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS), Long COVID, Post-Treatment Lyme Disease, and Fibromyalgia. We have facilitated and funded the establishment of 6 research centers across the globe, in 4 countries and 3 continents, dedicated to diagnosing, treating, and ultimately preventing these related chronic, complex diseases.

My daughter couldn’t be saved but there’s hope for other ME patients

In the early hours of October 3 last year, my eldest daughter, Maeve, died aged 27 from ME. This intelligent, creative, courageous young woman lived half her life with a truly awful disease. Bit by bit, ME stole away her youth, her promise and her independence.

Unrest

A documentary about living with ME

Bad science misled millions with chronic fatigue syndrome. Here’s how we fought back

Important article about one of the great injustices done to those with ME

me-pedia

Myalgic encephalomyelitis (ME) is a chronic, inflammatory, physically and neurological and immune-mediated disease that presents with symptoms involving multiple bodily systems. It is frequently triggered by a viral infection or a flu-like illness.[1][2] ME presents with symptoms in the central nervous system (CNS), autonomic nervous system (ANS), immune system, cardiovascular system, endocrine system, digestive system, and musculoskeletal system.[1][3]

Myalgic encephalomyelitis: a review with emphasis on key findings in biomedical research

Discusses the biological mechanisms in ME

Disability advocates condemn neglect of chronic fatigue syndrome sufferers

An article about the injustices being done to those with ME in Australia